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New to this group Posted by Jenny Morland on May 26, 2008, 4:33 pm 79.77.116.166 Hi there, My 4 year old son has just started on Levamisol and low dose steroid 35mg alternate days. Is there any hope that this willl work? Also interested to find out about other alternative therapy, has anyone tried? Jenny  Post a Response

Re: New to this group Posted by grayden on June 13, 2008, 10:06 am, in reply to "New to this group" 68.96.201.107 what is levamisol? the Neph. hasn't said anything about this drug. I know he hasn't been on it long but have you noticed any side effects. My son has been on pred. and cyclosporine and the doc. says if he keeps relapsing he'll have to go another round of the cyclo. but for a year this time. The side effects of this drug are horrible. If Leamisol has fewer side effects I'd like to suggest it. Good Luck with your son, this is a horrible thing for our kids to go through especially when we feel helpless and all we can do is pray the doctors know what their doing. --Previous Message-- : Hi there, : My 4 year old son has just started on : Levamisol and low dose steroid 35mg : alternate days. Is there any hope that this : willl work? Also interested to find out : about other alternative therapy, has anyone : tried? : Jenny :  Post a Response

Re: New to this group Posted by s-nathan on May 31, 2008, 11:38 am, in reply to "New to this group" 24.123.30.56 Good luck with your son. IN the past people have posted about success on Levamisol Does you son have MCNS or something else ? Also is he a frequent relapser or steroid-dependent Also look up http://www.nephcure.org/ --Previous Message-- : Hi there, : My 4 year old son has just started on : Levamisol and low dose steroid 35mg : alternate days. Is there any hope that this : willl work? Also interested to find out : about other alternative therapy, has anyone : tried? : Jenny :  Post a Response

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