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Re: my daughter

Posted by aquamarine on April 28, 2009, 5:11 am, in reply to "my daughter"
80.195.180.19

--Previous Message-- : Hi my name is Sherri and I have an 11 year old : daughter who was diagnosed with Minimal : Change Nephrotic Syndrome on December 22, : 2008. She was 10 at the time. When we were : told her diagnosis i had never heard of this : disease. I had no idea what to expect. She : was on Prednisolone and ended up in : remission fairly quick. I thought that : since she responded to the medication so : quick that it would not ever come back. : Well I was wrong. It just came back last : week. She is on a high dosage of steroids : again. It breaks my heart watching what : this medicine does to her poor little body. : She is embarressed by it and doesn't want : any of her friends to know. She went into a : pretty deep depression the first time around : i just pray to god she doesn't get depressed : again. Is there anything i can do for her : to keep her from getting so depressed? : Hi My daughter hannah will be nine shortly and has the disease for nearly four years and this year she has been so embarassed by it i think alot of it is age and school etc. I went into her school and had a word with her teacher who gave her class a talk on the disease and why hannah has so much time off school, mood swings due to steroids etc. Hannah has been luck and has some very good friends who help her. She also has two friends with the disease who we met whilst being in hospital (Evalina Childrens Hospital in London)who she has kept in contact with so she knows she is not on her own. Unfortunately this is quite a rare illness so not many people no about it but tell her to talk to her best friend and hopefully thye will be able to help her.

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Message Thread: my daughter - shermill April 1, 2009, 3:55 pm Re: my daughter - tanya clegg July 3, 2009, 6:36 pm Re: my daughter - aquamarine April 28, 2009, 5:11 am « Back to thread

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