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searcing for hope

Posted by grayden on June 13, 2008, 9:36 am
68.96.201.107

My son was diagnosed with mcns in nov of 2006 he was not responding to the prednisone, each time he was almost weaned off he would relapse. The Doc suggested a biopsy and reaching for any hope we could we had it done. It showed mcns with IGM deposits which I don't fully understand (is this a good thing or a bad thing) anyway, they put him on cyclosporine for six months and that seemed to do the trick. Until March of this year and he relapsed after a cold. we weaned him off the pred. after a month and he seemed to do fine then his allergies kicked up from the wonderful weather here. and his protien started to climb again this week. The Doc put him back on pred. yesterday. Assuring me that this was just an annoying disease. "He wont need a transplant or dialysis and this will go dormant in his body someday." has anyone had there child just overcome the disease. Any suggestions prayers or comments would be greatly appreciated. Also if there's anyone that would like to talk I really need a parent to talk to who's going through this. As all of you know family is real supportive, but they just don't fully understand. Please email me and I will send my# ashtonemail@cox.net

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Message Thread: searcing for hope - grayden June 13, 2008, 9:36 am « Back to thread

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