

*NOTE* You must register to use this board. All posts will be reviewed before being posted. This is done for your protection and to stop spammers with nothing better to do with their time. Your post will usually show up within a few hours.
Posted by eccrane
![]()
on June 2, 2008, 12:16 am, in reply to "2yr Old Daughter"
71.164.23.128
Hi there,
My daughter was diagnosed Oct '07 at 21 months old and after finishing her first Prednisone round in early January (with great success) she relapsed 6 weeks later after getting a little stuffy nose. Her relapse was caught early before edema and she responded quickly to the Prednisone. We had about 6 weeks of treatment for her relapse and it's now been 6 weeks since she's been off and she's doing great. She had a high fever/flu for 5 days this week and her protein still stayed at negative so we are very hopeful that means that her little body is fighting hard and is strong right now. Try not to be too discouraged by this quick relapse. At this age and during these first few years after diagnosis, I've been told that this is very common. I hope that your daughter will respond quickly and consistently and that this summer will bring an end to cold season and hopefully an end to more relapses. Utilize the nephrology clinic resources to the fullest extent (on-call docs, nurses, available research/information packets, etc) to keep yourself informed and remember that you're not alone!
Reach out if you need anything,
Casey
--Previous Message--
: Hi,
:
: My daughter is diagnosed with NS when she
: was 18 months (1 1/2 years) old. After the
: Prednisolone (30 Gm Daily for 30 days and
: 15 gm every consecutive days for 30 days)
: she returned to normal. But now (after 3
: months without drug) her urine again shows
: +++ protein.
:
: Anyone here has similar condition. pls share
:
: Balaji
:
eccrane@verizon.net
Message Thread:
![]()
« Back to thread
Please consider
supporting our mission Kidcomm is an
online resource for parents of children with nephrotic syndrome and other kidney
diseases. Your donations help keep Kidcomm, it's email support groups and this
bulletin board up and running. Please consider donating in
order to help us help you. Click
here if you would like to donate
Vist our home site Kidcomm - An online resource for Parents.
Join one of our private email support groups for parents and kids!
See our selection of books to help you cope!
See our selection of books to help your child cope!