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Re: Rituximab Therapy

Posted by aquamarine on May 29, 2008, 2:51 pm, in reply to "Re: Rituximab Therapy"
82.43.222.62

--Previous Message-- : : : --Previous Message-- : Hi All : : Just to let you know that my daughter Hannah : who has steroid resistant nephrotic syndrome : for 2 1/2 yrs anad is aged 7 now is going to : be having a second lot of rituximab theraphy : on the 5th and 19th of march 08. She has her : first lots of this back in April 2006 and : that put her into remission after six weeks : and was the only thing to do so. She stayed : in remission for 15 months but relapsed last : july 07 and had been on many high steroids : and cyclopsorine since so i am glad that : finally our london hospital has agreed to : give her a second lot. I will keep you : posted to developments but fingers crossed : it will work as good as last time???? The : treatment does leave her feeling more tired : but after a short time i know from last time : she should pick up? : : : Hi there, are you able to tell me which : hospital- I know someone who needs this but : the hospital is having problems getting the : drug - something to do with money, funding : or something : Thanks :H Hi Just to let you know my daughter had the second lot of rituximab in march 08 at the Evalina Childrens Hospital in London,and this time it did not go as well -- Within the first ten minutes of the infusion starting she had severe stomach cramps and eventually passed out twice with pain so it took alot longer to do as they kept having to stop and start. Hannah was suppose to be having the second lot two weeks later but because it made her so unwell since having it done they decided not to do it but once they did blood results they realized she did not need it anyway as just the first lot had done what it was suppose to do. This time has certainly not been as successful energy wise but she went into remission within weeks again so thats good. But she is just picking up any bug that is going around so fingers crossed this will get better. We dont now have to see our consultant till aug 08 .

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Message Thread: Rituximab Therapy - aquamarine February 10, 2008, 6:43 am Re: Rituximab Therapy - grayden June 13, 2008, 9:38 am Re: Rituximab Therapy - patjo May 28, 2008, 2:02 pm Re: Rituximab Therapy - aquamarine May 29, 2008, 2:51 pm Re: Rituximab Therapy - britfun67 February 22, 2008, 9:51 am Re: Rituximab Therapy - aquamarine February 26, 2008, 12:21 pm « Back to thread

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