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Posted by Ethansmom on April 20, 2008, 7:00 pm, in reply to "Frequency of relapses..."
70.246.170.69
I think that the doctors are reluctant to give you an answer because it differs so greatly from child to child. When my son was diagnosed in Sept of 05, we were told that if he went 3 years without a relapse, he would be considered cured. He almost made it, but relapsed after a minor sinus infection in December of 07. We started prednisone again, and he relapsed during the taper. After almost three years, I still have so many unanswered questions. You are very fortunate to find this message board so early in your diagnosis. I found it only this week, and it has already been so helpful! Good Luck!
--Previous Message--
: My 20-month-old son was diagnosed with NS two
: weeks ago (probably Minimal Change Disease)
: and is responding well to Prednisone (within
: days). I was devastated and shocked, but I'm
: trying to stay strong and positive.
:
: I know that 1 child out of 3 will get one
: course of Prednisone and never relapse. But
: what about the others? What proportion of
: kids relapse only once in a while versus
: frequently? I know each case is different,
: but the doctors don't seem to even want to
: give me a general idea about that...
:
: Thank you for your support.
: Pascale, Canada
:
:
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