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Re: How to make future plans?

Posted by Ethansmom on April 20, 2008, 6:53 pm, in reply to "Re: How to make future plans?"
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I am new to the message board, but not new to NS. My son was diagnosed in Sept. of 05. He finished his round of Prednisone and continued with Enalipril and Cozaar. In Nov. we planned a trip to Disney World for March. Two days after Christmas, his urine protein was +4. We started another round of Prednisone. He responed and we were tapering off during our vacation. He had a wonderful time! The day after we returned he again tested +4. After a week of continuing to taper and trying to allow his body a chance to correct itself, he was admitted into the hospital in a severe nephrotic state. He spent a week in the hospital receiving albumin/lasix treatments and received a much higher dose of prednisone. I don't know what the future holds, but last week we bought a rv and just returned from a camping trip (better than before the hospital bill comes in). My point is there is no pattern to this condition. My son was almost to the three year mark without a relapse when one hit out of the blue. It breaks my heart to see my son struggle with the side effects of the prednisone, but our family bonds have strengthened as a result of this condition. If a new baby will bring joy to your child and unity to your family, then I say go for it! You can't predict the future, and your love for your child will allow you to cope with anything that comes your way. Who knows? Maybe your child will be one of the lucky ones who never relapses.
Good luck and God Bless!

--Previous Message--
: I'm in the same situation with my 20-month-old
: son. We were starting to think about baby
: #2, probably to start trying this summer
: (2008). But he will only finish his first
: treatment of Pred this summer, and I'd like
: to wait a few months after that to see how
: the siatuation will evolve: will he relapse
: once off the medication, or not.... Bevause
: dealing with a newborn is demanding
: enough... So I totally understand your
: dilemma.
:
: Your post dates back to a few months... What
: did you end up deciding, for the cruise and
: for getting pregnant again?
:
: Good luck to all. Pascale
:

Message Thread:

How to make future plans? - eccrane October 16, 2007, 2:43 pm
- Re: How to make future plans? - britfun67 December 9, 2007, 1:49 pm
- Re: How to make future plans? - Denise October 25, 2007, 9:36 am
  - Re: How to make future plans? - pascale March 11, 2008, 7:38 pm
    - Re: How to make future plans? - Ethansmom April 20, 2008, 6:53 pm
    - Re: How to make future plans? - Ethansmom April 20, 2008, 6:40 pm
    - Re: How to make future plans? - eccrane March 16, 2008, 7:02 pm
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--Previous Message-- : I am new to the message board, but not new to : NS. My son was diagnosed in Sept. of 05. : He finished his round of Prednisone and : continued with Enalipril and Cozaar. In : Nov. we planned a trip to Disney World for : March. Two days after Christmas, his urine : protein was +4. We started another round of : Prednisone. He responed and we were : tapering off during our vacation. He had a : wonderful time! The day after we returned : he again tested +4. After a week of : continuing to taper and trying to allow his : body a chance to correct itself, he was : admitted into the hospital in a severe : nephrotic state. He spent a week in the : hospital receiving albumin/lasix treatments : and received a much higher dose of : prednisone. I don't know what the future : holds, but last week we bought a rv and just : returned from a camping trip (better than : before the hospital bill comes in). My : point is there is no pattern to this : condition. My son was almost to the three : year mark without a relapse when one hit out : of the blue. It breaks my heart to see my : son struggle with the side effects of the : prednisone, but our family bonds have : strengthened as a result of this condition. : If a new baby will bring joy to your child : and unity to your family, then I say go for : it! You can't predict the future, and your : love for your child will allow you to cope : with anything that comes your way. Who : knows? Maybe your child will be one of the : lucky ones who never relapses. : Good luck and God Bless! : : --Previous Message-- : I'm in the same situation with my : 20-month-old : son. We were starting to think about baby : #2, probably to start trying this summer : (2008). But he will only finish his first : treatment of Pred this summer, and I'd like : to wait a few months after that to see how : the siatuation will evolve: will he relapse : once off the medication, or not.... Bevause : dealing with a newborn is demanding : enough... So I totally understand your : dilemma. : : Your post dates back to a few months... What : did you end up deciding, for the cruise and : for getting pregnant again? : : Good luck to all. Pascale : : :

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