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Posted by pascale on March 11, 2008, 6:12 pm, in reply to "Re: Liq Prednisolone tastes ICKY"
74.59.196.166
My 20-month-old son was diagnosed just 2 weeks ago. I see these posts date back a few months, but I would be interested in knowing how your kids are doing, esp. since they were diagnosed around the same age. My son responded to Prednisone within 2-3 days, but when it comes to the future (relapses...), only time will tell. And thats what's hard: not knowing.
I'm trying to stay strong, but I also feel scared, helpless, sad... even angry that this is happening to us with such a rare syndrome...
I would be very interested in comparing notes, and sharing support and stories with other parents here. My name is Pascale & I'm from Montreal, Canada.
Thank you,
PS: My son did not want to take the Pred, but now he doesn't resist as much. I will inquire about the grape-flavoured one though.
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