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Re: Hi...Another Newbie Here

Posted by britfun67 on January 22, 2008, 12:50 pm, in reply to "Hi...Another Newbie Here"
65.184.21.76

Hi Mel - I am so sorry. My 3 yr old daughter was diagnosed almost 1 yr ago. She has responded well to the Pred but has relapsed 3 times UGH! Breaks my heart. If you want to talk I am at britfun67@aol.com it truly helps to have someone who understands. god bless, Lorrayne xxx --Previous Message-- : Hello everyone. My name is Melinda and I am : from Oklahoma. My 4-yr old son, Connor, was : very recently diagnosed with Nephrotic : Syndrome...only about 2 weeks ago. : : Over the past couple of months, I had had : various people mention to me that they : thought Connor's face looked swollen. I : suppose my hubby and I didn't notice because : we were with him all the time and couldn't : see the changes in him so we brushed it off. : Until about 2 and a half weeks ago...my sons : had spent the night with my parents and when : they brought them home the next day, : Connor's face, stomach, legs and hands were : obviously swollen so I took him to the : Minor-Emergency Center in our town. The Dr. : there said he was having an allergic : reaction to something and to take him home : and give him Benadryl. : : The next morning it appeared the swelling : had gone down some until I went to give him : a bath and saw that his genitals were 2 to 3 : times there normal size. I took him to the : ER where they performed several tests on him : and ultimately concluded there was a major : problem with his kidneys and sent him to see : his regular pediatrician who was the first : to bring up the Nephrotic Syndrome. When he : told me all the symptoms, it all started to : make sense...he had been urinating less, the : puffiness, etc. : : My son was immediately admitted to Childrens : Hospital in Oklahoma City where he saw a : nephrologist and he was started on the : prednisone, and furosemide(diuretics). His : blood pressure was also very high so he was : given blood pressure medication also. They : also gave him albumen to bring those levels : back up. He was in the hospital for 3 : days...he lost 8 lbs just in those 3 : days...all water weight. : : Since we've been home, we've been adjusting : to our new lifestyle...all the medication, : testing his urine daily and the : low-sodium/low-sugar diet, which he's all : handling like a trooper. He's been testing : negative on the protein levels in his urine : for the past few days, and were told just : today we could take him off the diuretics : and reduce the blood pressure med. We're : still trying to get used to the side-effects : of the pred. His behavior has changed : significantly...he's certainly not the same : happy-go-lucky boy he used to be and that : saddens me alot. Not to mention the fact : that the boy is going to eat us out of house : and home with his increase in appetite! : : We go back to see the nephrologist Jan. 15. : In the meantime he's been making regular : trips to his pediatrician just to keep an : eye on him. : : I've been trying to do lots of research on : Neph. Syndrome since we found out and : stumbled on this site today. Its so nice to : know there are other people out there who : know what we're going through and can share : info with me, since I still feel so in the : dark about what is going to happen with my : little boy in the future. I keep wondering : how this happened to him...my sweet, little : boy...but I suppose you've all had those : feelings too. : : Thank you for taking the time to read our : story and I look forward to sharing more : with you as we go on dealing with this : issue. : : Mel : USA :

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Message Thread: Hi...Another Newbie Here - Mel December 27, 2007, 3:01 pm Re: Hi...Another Newbie Here - britfun67 January 22, 2008, 12:50 pm Re: Hi...Another Newbie Here - dscmvalentine January 16, 2008, 4:46 pm « Back to thread

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