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Posted by dscmvalentine on January 16, 2008, 4:42 pm, in reply to "new "
65.255.238.21
Hi There
I'd also like to let you know you are not alone in this world of Nephrotic Syndrom. My son was diagnosed on Oct 2 of this year - he just tturned 2 in December. We have been on a crazy road since then. He finished his steriods on Dec 28. This past week he has started to show a rise in his protien levels again. We are now in the waitng period to see if he will need to go on the steriods again already.
I wish you and your family the best of luck with your experience and hope you are able to find a good doctor. We are in Alberta, Canada and are dealing with the pediatric Neph Unit at the Stollery Children's Hospital and they seem to be great (although it is a 2 hour drive for us to go to the appointments).
If you would like to get intouch my email address is valentine@harewaves.net
Shannon
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