KidComm Nephrotic Syndrome Parents Place : Re: How to make future plans?

[ Post a Response | KidComm Nephrotic Syndrome Parents Place ]

*NOTE* You must register to use this board. All posts will be reviewed before being posted. This is done for your protection and to stop spammers with nothing better to do with their time. Your post will usually show up within a few hours.

Re: How to make future plans?

Posted by britfun67 on December 9, 2007, 1:49 pm, in reply to "How to make future plans?"
205.188.116.141

I totally know what you mean. I am from the UK and everytime I plan to go home to see my family she relapses and I can't go - can't drag her on an airplane and to London while she is like this. I don't know what to do, now I am hopng to go for easter when the weather is a bit better there but what if she relapses while i am in England????????

--Previous Message--
: My 21 month old daughter was just diagnosed
: with MCNS last Monday. She seems to be
: doing well and starting to respond to the
: Prednisone. Now that things are started to
: sink in and the short term concerns seem to
: be coming under control, I'm not sure how we
: plan for long term things. For example, the
: plan is that she'll be on the Pred for a
: total of 16 weeks which brings us through
: the end of January. We had planned on
: taking a Disney Carribean cruise in February
: - so how do I know if we should cancel that
: (in case something happens with her Pred or
: she relapses or she shouldn't be around so
: many kids???)? We had also planned on
: trying to get pregnant at the beginning of
: the year and I wonder if we should wait
: until we have a better idea of what
: Madison's pattern will be - if there even is
: such a thing. I know that these aren't
: questions that someone else can answer for
: me - I just don't know how to begin making
: these types of decisions.
:
: Any help?
:

Message Thread:

How to make future plans? - eccrane October 16, 2007, 2:43 pm
- Re: How to make future plans? - britfun67 December 9, 2007, 1:49 pm
- Re: How to make future plans? - Denise October 25, 2007, 9:36 am
  - Re: How to make future plans? - pascale March 11, 2008, 7:38 pm
    - Re: How to make future plans? - Ethansmom April 20, 2008, 6:53 pm
    - Re: How to make future plans? - Ethansmom April 20, 2008, 6:40 pm
    - Re: How to make future plans? - eccrane March 16, 2008, 7:02 pm
« Back to thread

Post a Response

Subject:

Message:

--Previous Message-- : I totally know what you mean. I am from the : UK and everytime I plan to go home to see my : family she relapses and I can't go - can't : drag her on an airplane and to London while : she is like this. I don't know what to do, : now I am hopng to go for easter when the : weather is a bit better there but what if : she relapses while i am in England???????? : : --Previous Message-- : My 21 month old daughter was just diagnosed : with MCNS last Monday. She seems to be : doing well and starting to respond to the : Prednisone. Now that things are started to : sink in and the short term concerns seem to : be coming under control, I'm not sure how we : plan for long term things. For example, the : plan is that she'll be on the Pred for a : total of 16 weeks which brings us through : the end of January. We had planned on : taking a Disney Carribean cruise in February : - so how do I know if we should cancel that : (in case something happens with her Pred or : she relapses or she shouldn't be around so : many kids???)? We had also planned on : trying to get pregnant at the beginning of : the year and I wonder if we should wait : until we have a better idea of what : Madison's pattern will be - if there even is : such a thing. I know that these aren't : questions that someone else can answer for : me - I just don't know how to begin making : these types of decisions. : : Any help? : : :

Optional Link Title:
Optional Link URL:

By posting, you confirm that you have read and agreed to be bound by Boardhost's usage terms.

Please consider supporting our mission

Kidcomm is an online resource for parents of children with nephrotic syndrome and other kidney diseases. Your donations help keep Kidcomm, it's email support groups and this bulletin board up and running. Please consider donating in order to help us help you.

Click here if you would like to donate

Vist our home site Kidcomm - An online resource for Parents.

Join one of our private email support groups for parents and kids!
See our selection of books to help you cope!

See our selection of books to help your child cope!