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Posted by britfun67 on December 9, 2007, 1:44 pm
205.188.116.71
Hello everyone. My 3 year old daughter was Diagnosed back in April (by me as i am sure most of you found)after the docs kept telling me she had allergies and I would not accept that. I kept researching her symptoms until I stumbled across NS. She was 2 1/2 at the time. I took her back to the doc and made them test her pee and i was right. She was then admitted into the hosp and we were there 4 days. She responded well to Pred. remained neg for 137 days but after 37 days of being of Pred she got a cold and relapsed - did a month of Pred got her off, one month later she has just relapsed again but we are not sure why. She is back on 9CC of Pred but we are trying just every other day to start. I am devastated as all you other parents are. I keep her in a bubble as best i can - i guess i am over protective. We adopted her from China when she was 11 months old and she is the LOVE of my life - I cannot bear to see her suffer - she has already been through so much in her little life. However, I am babbling sorry. I am thrilled to find this group and sad that we all have to be here. hope to get to know some of you. God Bless Lorrayne xxx
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