KidComm Nephrotic Syndrome Parents Place : We are new here too!!

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We are new here too!!

Posted by Teeswa on November 25, 2007, 6:25 pm
209.115.255.165

Hi all. My name is Theresa and I have a four year old son named Daylen who was diagnosed with Nephrotic syndome in May. They are sending him for a biopsy because he seems to keep relapsing. I am going to try a naturopathic DR in December to see if there is something they can do to help. I am still trying to wrap my head around this whole thing, I keep coming up with questions and I am glad to read all the e-mails and I don't feel so alone. I have two other kids. both girls aged 9 and 1 1/2. My husbands currently works away from home so some days seem crazier than others with little release for myself.
I also have a normally sweet caring and loving little boy, who after being on Prednisone changes dramatically. It is so hard to watch and having to limit fluid intake and watch his sodium, I feel like I am always saying no to him about something and it breaks my heart. But you have to do what is best for them even though they don't understand. I am not sure what it is that they are looking for in this biopsy, we go to our Neph Dr in December. I wish you all the best for yourselves and your family's and look forward to getting to know all of you. Take care and be strong!

Theresa

Message Thread:

We are new here too!! - Teeswa November 25, 2007, 6:25 pm
- Re: Naturopath - s-nathan December 17, 2007, 4:33 pm
- Re: We are new here too!! - aquamarine December 1, 2007, 3:53 pm
  - Wendy - britfun67 December 9, 2007, 1:46 pm
  - Rituximob- to Wendy - Mika December 1, 2007, 10:22 pm
- Re: We are new here too!! - Mika November 29, 2007, 12:09 pm
- Re: We are new here too!! - RalucaMac November 27, 2007, 12:13 am
- Re: We are new here too!! - RalucaMac November 27, 2007, 12:03 am
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--Previous Message-- : Hi all. My name is Theresa and I have a four : year old son named Daylen who was diagnosed : with Nephrotic syndome in May. They are : sending him for a biopsy because he seems to : keep relapsing. I am going to try a : naturopathic DR in December to see if there : is something they can do to help. I am : still trying to wrap my head around this : whole thing, I keep coming up with questions : and I am glad to read all the e-mails and I : don't feel so alone. I have two other kids. : both girls aged 9 and 1 1/2. My husbands : currently works away from home so some days : seem crazier than others with little release : for myself. : I also have a normally sweet caring and : loving little boy, who after being on : Prednisone changes dramatically. It is so : hard to watch and having to limit fluid : intake and watch his sodium, I feel like I : am always saying no to him about something : and it breaks my heart. But you have to do : what is best for them even though they don't : understand. I am not sure what it is that : they are looking for in this biopsy, we go : to our Neph Dr in December. I wish you all : the best for yourselves and your family's : and look forward to getting to know all of : you. Take care and be strong! : : Theresa :

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