KidComm Nephrotic Syndrome Parents Place : How to make future plans?

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How to make future plans?

Posted by eccrane on October 16, 2007, 2:43 pm
71.113.23.87

My 21 month old daughter was just diagnosed with MCNS last Monday. She seems to be doing well and starting to respond to the Prednisone. Now that things are started to sink in and the short term concerns seem to be coming under control, I'm not sure how we plan for long term things. For example, the plan is that she'll be on the Pred for a total of 16 weeks which brings us through the end of January. We had planned on taking a Disney Carribean cruise in February - so how do I know if we should cancel that (in case something happens with her Pred or she relapses or she shouldn't be around so many kids???)? We had also planned on trying to get pregnant at the beginning of the year and I wonder if we should wait until we have a better idea of what Madison's pattern will be - if there even is such a thing. I know that these aren't questions that someone else can answer for me - I just don't know how to begin making these types of decisions.
Any help?
eccrane@verizon.net

Message Thread:

How to make future plans? - eccrane October 16, 2007, 2:43 pm
- Re: How to make future plans? - britfun67 December 9, 2007, 1:49 pm
- Re: How to make future plans? - Denise October 25, 2007, 9:36 am
  - Re: How to make future plans? - pascale March 11, 2008, 7:38 pm
    - Re: How to make future plans? - Ethansmom April 20, 2008, 6:53 pm
    - Re: How to make future plans? - Ethansmom April 20, 2008, 6:40 pm
    - Re: How to make future plans? - eccrane March 16, 2008, 7:02 pm
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--Previous Message-- : My 21 month old daughter was just diagnosed : with MCNS last Monday. She seems to be : doing well and starting to respond to the : Prednisone. Now that things are started to : sink in and the short term concerns seem to : be coming under control, I'm not sure how we : plan for long term things. For example, the : plan is that she'll be on the Pred for a : total of 16 weeks which brings us through : the end of January. We had planned on : taking a Disney Carribean cruise in February : - so how do I know if we should cancel that : (in case something happens with her Pred or : she relapses or she shouldn't be around so : many kids???)? We had also planned on : trying to get pregnant at the beginning of : the year and I wonder if we should wait : until we have a better idea of what : Madison's pattern will be - if there even is : such a thing. I know that these aren't : questions that someone else can answer for : me - I just don't know how to begin making : these types of decisions. : : Any help? :

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