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Posted by eccrane on October 14, 2007, 7:29 pm, in reply to "Re: Liq Prednisolone tastes ICKY" I would love to chat on email with you. I don't know if you saw my subsequent posting, but we switched to Orapred (generic or brand are good) and it is night and day in terms of taste. I wouldn't say that she loves it and begs for it, but she drinks it all down by herself without needing anything to wash it down. We are on day 4 of the steriods and she is still super swollen and has low urination with Accustix reading off the chart. I am so anxious to see her face again. I am worried about the effects of using the Prednisone too. So far she hasn't seemed to be affected by it and we will welcome an increase of appetite when that happens since she hasn't eaten much at all in the last 10 days since this all started. She was dianosed on 10/8 so you're a week ahead of me. I would love to chat more and compare notes. We meet with the nephrologist (FINALLY - it will be the first time) tomorrow at Children's and have a renal ultrasound so hopefully we will know more then. Thanks again, --Previous Message--
71.113.23.87
Thanks Shannon,
Casey
: Hi
: My 22 month old was just diagnosed with MCNS
: last week as well. Although he doesn't care
: for the taste we've been getting it into him
: by offering it in a variety of ways - number
: one right now being to drink it from a straw
: out of a medicine cup. I just got a new
: batch and now have them flavored (a
: different flavor in each bottle, which lasts
: about a week).
:
: I would love to hear from other parents of
: this age group as well. My son is a twin
: and it was surprising to find out about this
: syndrome when he was diagnosed (october
: 2nd). The prednisone took a week to start
: working and his swelling has just getting
: back to normal. I am also concerned about
: the side effects we were told about due to
: the steriods.
:
: Shannon
:
eccrane@verizon.net
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