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Primary FSGS diagnosis

Posted by AlexsMom on July 17, 2007, 10:29 pm
70.17.157.254

My son was diagnosed with Primary FSGS two weeks ago and like other parents, I cannot find anything positive about the outsome of this disease. Alex had a high protein count at his routine physical in 2006, but his pediatrician was not alarmed. In 2007 at his routine physical, his counts were almost double what they were the previous year, so he sent us to a specialist. A biopsy was immediately scheduled and the results came back as Primary FSGS - non-responsive to steroid therapy. We are trying to decide how to continue, the specialist has suggested ACE Inhibitors and ARB treatment...my husband and I are trying to find infomration on this and what the prognosis is when using this. Any words of advice/encouragement would be greatly appreciated. I have a history of Kidney disease in my family although most everything I have read states it is not commonly passed through family. My father is being treated for IgA neuropathy, but is now questioning that based on Alex's diagnosis. Thanks for listening. Melanie

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Message Thread: Primary FSGS diagnosis - AlexsMom July 17, 2007, 10:29 pm « Back to thread

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