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Posted by s-nathan on July 7, 2007, 2:32 pm, in reply to "Freq. relapse/Steroid dependand" We noticed that he has relapsed both times when the dose went down by 0.5 mg/kg increment (from 1.0 mg/kg to 0.5 mg/kg during 1st relapse or from 1.5mg/kg to 1.0mg/kg during 2nd relapse). We are working with his nephrologist to go slow (in increments of 0.25mg/kg) during the current taper schedule. We are concerned that he may relapse yet again. His nephrologist has mentioned Cytoxan (or Cyclophosphamide) should there be future relapses. Thank you
24.123.30.56
My son, now 7 and 1/2, was diagnosed with MCNS in October 2006. He responded to prednisolone (steroid) and was being tapered off when he relapsed first time in Feb. He went back up to the full dose and was being tapered when he relapsed again in May. He has steroid dependent MCNS.
Can Steve or other people share experiences of their children being initiated on Cytoxan....it will help us on what to expect.
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