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Re: Freq. relapse/Steroid dependand

Posted by Dylyssany on 4/27/2006, 1:20 am, in reply to "Freq. relapse/Steroid dependand"
60.230.195.156

Hi I am in the same situation as you. my son was Diagnosed in September last year and since then he has practically been on steroids the whole time. Everytime we taper him off his condition flares up immediately. We have just tried levamisole this last month and it didn't help at all. We are now looking at trying one of the two other medicines and are really finding it hard to decide which one to pick, either Cyclosporin or cyclophosphamide? Do you have much information on either of these medicines and if so which one would be your choice.? --Previous Message-- : Hi all, my daughter was diagnosed with MCNF in : June05 and has had seven relapses (including : one now) over the past 9 months. We seem to : be going thru the same cycle every 5 weeks : or so although some relapses are more severe : than others. So far (fingers crossed) she : has responded to steroids each time. She : recently tried Levamisole although this does : not seem to have worked as she has had 3 : relapses since. The doc's are going to : change the steroid weening strategy (2 wks : on 60/day, then 4 wks 60 / alternate day) as : they think that maybe her body cannot cope : with a sharp reduction. Has anyone been in a : similar situation? Also, do the relapses : become less frequent over time? :

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Message Thread: Freq. relapse/Steroid dependand - Steve 4/7/2006, 7:21 am Re: Freq. relapse/Steroid dependent TAPER Question - s-nathan July 7, 2007, 2:32 pm Re: Freq. relapse/Steroid dependent TAPER Question - stephensaffhill July 9, 2007, 4:32 am Re: Freq. relapse/Steroid dependent TAPER Question - RalucaMac September 6, 2007, 3:15 pm Re: Freq. relapse/Steroid dependand - Mike 4/29/2006, 6:19 pm Re: Freq. relapse/Steroid dependand - Dylyssany 4/27/2006, 1:20 am Re: Freq. relapse/Steroid dependand - Steve 4/28/2006, 9:22 am Re: Freq. relapse/Steroid dependand - Wendy 4/7/2006, 8:50 am Re: Freq. relapse/Steroid dependand - s-nathan May 31, 2008, 12:04 pm « Back to thread

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