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Freq. relapse/Steroid dependand

Posted by Steve on 4/7/2006, 7:21 am
130.32.42.1

Hi all, my daughter was diagnosed with MCNF in June05 and has had seven relapses (including one now) over the past 9 months. We seem to be going thru the same cycle every 5 weeks or so although some relapses are more severe than others. So far (fingers crossed) she has responded to steroids each time. She recently tried Levamisole although this does not seem to have worked as she has had 3 relapses since. The doc's are going to change the steroid weening strategy (2 wks on 60/day, then 4 wks 60 / alternate day) as they think that maybe her body cannot cope with a sharp reduction. Has anyone been in a similar situation? Also, do the relapses become less frequent over time?

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Message Thread: Freq. relapse/Steroid dependand - Steve 4/7/2006, 7:21 am Re: Freq. relapse/Steroid dependent TAPER Question - s-nathan July 7, 2007, 2:32 pm Re: Freq. relapse/Steroid dependent TAPER Question - stephensaffhill July 9, 2007, 4:32 am Re: Freq. relapse/Steroid dependent TAPER Question - RalucaMac September 6, 2007, 3:15 pm Re: Freq. relapse/Steroid dependand - Mike 4/29/2006, 6:19 pm Re: Freq. relapse/Steroid dependand - Dylyssany 4/27/2006, 1:20 am Re: Freq. relapse/Steroid dependand - Steve 4/28/2006, 9:22 am Re: Freq. relapse/Steroid dependand - Wendy 4/7/2006, 8:50 am Re: Freq. relapse/Steroid dependand - s-nathan May 31, 2008, 12:04 pm « Back to thread

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