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Re: Steroid resistant nephrotic syndrome

Posted by Darka on 3/10/2006, 6:15 pm, in reply to "Re: Steroid resistant nephrotic syndrome"
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my daughter was diagnosed with what we thought was mcns in oct of 2005 when the steroids did nothing other then show physical improvement which comes and goes the chemical part was not improving at all about 4 wks after diagnosis and no improvement they sent her for a biopsy which shoowed the fsgs. she has been on many other meds none of which have started to work. have they done a biopsy yet? there are other meds out there that they use for this so hopefully in the long run your neph will be able to find something that works. It takes a lot of research and learning about this disease we are still new to it and have a lot to learn thankfully i have found some people i can ask questions to otherwise i would be in a world of darkness. take care and wish you the best!! Darla (4 1/2 yr old kelsay with fsgs) --Previous Message-- : : : --Previous Message-- : My 7 year old daughter was diagnosed with : nephrotic syndrome almost 4 weeks ago. She : is being treated with prednisone, but so far : apart from a reduction in her odema levels, : there has been no response. Can anyone tell : me what happens next. Her paediatrician is : suggesting she will need a biopsy done at : the 4 week level if her urine is not free of : protein. I feel so helpless not knowing : where we go from here and what other : treatment options are available. : : :

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Message Thread: Steroid resistant nephrotic syndrome - Vicki 3/7/2006, 5:37 pm Re: Steroid resistant nephrotic syndrome - Bob January 9, 2008, 11:14 pm Re: Steroid resistant nephrotic syndrome - RalucaMac January 21, 2008, 6:43 pm Re: Steroid resistant nephrotic syndrome - Dawn 3/9/2006, 5:39 pm Re: Steroid resistant nephrotic syndrome - PAWAN 3/8/2006, 6:50 am Re: Steroid resistant nephrotic syndrome - s-nathan December 17, 2007, 5:03 pm Re: Steroid resistant nephrotic syndrome - PAWAN 3/8/2006, 6:40 am Re: Steroid resistant nephrotic syndrome - Darka 3/10/2006, 6:15 pm « Back to thread

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