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Posted by Dawn on 3/9/2006, 5:39 pm, in reply to "Steroid resistant nephrotic syndrome" --Previous Message--
64.136.49.228
Vicki,
My son was 7 also when he fell sick. They believed that he had Minimal Change Nephrotic Syndrome. The standard course for prednisone in the US is six weeks. My son did not respond to steroids. If the docs need to do a biopsy and you feel comfortable in their competency....and you have done your research then it would be good to know what exactly what the underlying issues are. There are several different kinds of therapy that they can use to combat this condition. Try to be strong and start keeping a log of blood pressure, urine protein, laboratories. The two things you must do are to research and love her bunches every day. Stay positive and if you need me I check these posts every couple of days.
: My 7 year old daughter was diagnosed with
: nephrotic syndrome almost 4 weeks ago. She
: is being treated with prednisone, but so far
: apart from a reduction in her odema levels,
: there has been no response. Can anyone tell
: me what happens next. Her paediatrician is
: suggesting she will need a biopsy done at
: the 4 week level if her urine is not free of
: protein. I feel so helpless not knowing
: where we go from here and what other
: treatment options are available.
:
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